Tuesday, March 16, 2010

Oncologist Appt.

I have a slow growing follicular B cell Lymphoma. There isn't necessarily a cure for it but there is treatments to help symptoms. Because I have no symptoms (night sweats, fevers, nausea, wt loss, etc) I don't start any chemo at this time. When I have symptoms ( 1 yr, 2 yrs etc) then at that time I will start the recommended chemo. It will take away symptoms and but they will return at some point (unknown how long 3 yrs, 5 yrs , 10 yrs). The reason I don't do treatment now is because chemo will do damage to my body and if we can prolong that it will be beneficial to me. Since the Lymphoma is recurring and will have to go through chemo potentially many times in my life, the less times the better to help prolong my life longevity. Also by waiting new treatments and possibly a cure will come out that will be a better treatment than the current ones. The oncologist says things are happening every day to improve/cure cancers. I will continue to have a PET scan which will look for any other cancers. I also have to have a bone marrow biopsy (ouch). The point of the bone marrow is to see if the cancer is in my bone marrow, if it is and is greater than 50% they may consider a bone marrow transplant. A bone marrow biopsy will also look for any other "hiding" cancer that should require immediate chemo. I will also be seeing a Lymphoma specialist (prob IU Med Center) per Dr Goksel's recommendation as a second opinion and also because they are the "specialist" in this type of cancer. By seeing the specialist I also will be already established as their patient incase I need more specialized care. It also allows me to (and this is the cool part) let them run research blood tests/treatments on me that will potentially be able to help cure mine and other patient cancers!!! So it's like getting to be a nurse twice ( one as a caregiver and one as a patient!) I will be seeing Dr Goksel on a monthly basis for monitoring. I am on an all natural diet, regular exercise and taking supplements to help boost my immune system.
So how am I doing??? I have just as much hope going into the appointment as coming out. WHY? Because my hope is in Christ. At times fear enters my mind but I remember the Truth! God didn't take me overnight in my sleep. He has allowed me the opportunity to fight this disease. He's allowed me the opportunity to love my amazing husband and beautiful children longer here on earth. He's allowed me the opportunity to still be a nurse (I will be able to return to work soon). He's allowed me the opportunity to potentially help other cancer patients by giving my blood etc for tests. AND...He's allowed me the opportunity to continue to pray for a complete healing!
I'll still keep posting updates! Thanks again for everything everyone is doing for me!
Kim

3 comments:

  1. I just have to say... I love you! Thanks so much for not only keeping all of us informed so that we can pray specifically but also for reminding all of us that your hope is in Christ! Your honesty and your hope encourage us all! Praise God!!

    You have such a heart and a testimony of God's goodness. I'm sure all who come in contact with you as a caregiver and as a patient will be blessed immensely!

    We're praying!
    ~Chad & Heidi

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  3. I am a member of the Order of Eastern Star. We have monthly meeting and tonight at our meeting I added you to our prayer list. As we added you I cried tears of sorrow. I know everyone is so positive I could not hold them back. I just want you to know that my heart goes out to you and your family. You are an amazing person. I think it is terrific how strong you are. Please know that I will continue to follow your progress and we all will continue to pray for you and your family.

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